Update 5/5/26
Andrew has been doing fairly well. We are so thankful he went five 1/2 weeks without any seizures. He did have what was probably a mild one last week, but he recovered quickly and was back to normal in...
Read Update →Disappointing MRI Results
We received the results from Andrew's most recent MRI. Unfortunately, it shows the tumor is now in his spinal column as well. Thankfully, he does not seem to be having any side effects related to this. The oncologist...
Read Update →April Update
Andrew has been on his new medication, (MeKinist) now for nearly a month with no side effects. We are thankful for that! He had a fun birthday and enjoyable Easter. We are grateful he was feeling well for both of...
Read Update →I spoke too soon
Andrew's birthday was Friday and he had a great day. Saturday, we went to his grandparents' house and swam and had dinner with them to celebrate him. Sunday morning, he woke up with some seizure activity that...
Read Update →A good week
Andrew's birthday was this week and it was a good one. There have been so many disappointments the last year from events being missed or rescheduled due to his not feeling well. Our prayer this week was that...
Read Update →Andrew
Today Andrew begins a new medication, a MEK inhibitor called trametinib, to hopefully reduce the tumor. It is not a chemotherapy, so on a good note, he will not have the typical chemotherapy side effects. It does, however, have its...
Read Update →Update 2/2
I have realized that there are over 30 wonderful people or groups praying for Andrew, and there is just no way I can keep updating everyone on a regular basis during normal life. I apologize that I can’t text...
Read Update →Back from "vacation"
We got back to CHLA late last evening via medical flight & ambulance. Sounds exciting, but it was actually a very long, tiring, and emotional day for Andrew. He was in PICU but just got transferred to his regular floor...
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