Updates about Andrew's DLGNT
Andrew had an extended series of focal aware seizures on Sunday. For him, these manifest as a mild headache, repeated vomiting, and sometimes speech issues. He was still really out of it Monday morning and was unable to speak in...
Read Update →Andrew is recovering well from his surgery. He has had a few headaches this week, but overall, he's doing fine. We continue to hope and pray that the new shunt will serve him better and that he will...
Read Update →Andrew's surgery went well today. It was a very early morning, since he had to check in at 5:30am. Surgery started around 7:45 and finished about an hour later. The surgery was as un-invasive and simple...
Read Update →Andrew has a surgery on Monday, August 10. Since his shunt was put in, he has been getting headaches when he does certain activities. We believe his shunt is working exactly as it should, but the style of valve it...
Read Update →The last month went well. We had a family vacation to Balboa Island that included a special time at Disneyland, a day of boogie boarding at the ocean, and lots of ice cream with cousins. Andrew made it through the...
Read Update →Overall Andrew has been living "normal" life with not much change from last month. He does still get mild headaches several times a week and has to stop whatever he's doing to lie down for half...
Read Update →Andrew has been doing fairly well. We are so thankful he went five 1/2 weeks without any seizures. He did have what was probably a mild one last week, but he recovered quickly and was back to normal in...
Read Update →We received the results from Andrew's most recent MRI. Unfortunately, it shows the tumor is now in his spinal column as well. Thankfully, he does not seem to be having any side effects related to this. The oncologist...
Read Update →Andrew has been on his new medication, (MeKinist) now for nearly a month with no side effects. We are thankful for that! He had a fun birthday and enjoyable Easter. We are grateful he was feeling well for both of...
Read Update →Andrew's birthday was Friday and he had a great day. Saturday, we went to his grandparents' house and swam and had dinner with them to celebrate him. Sunday morning, he woke up with some seizure activity that...
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