A good week
Andrew's birthday was this week and it was a good one. There have been so many disappointments the last year from events being missed or rescheduled due to his not feeling well. Our prayer this week was that...
Read Update →Updates about Andrew's DLGNT
Andrew's birthday was this week and it was a good one. There have been so many disappointments the last year from events being missed or rescheduled due to his not feeling well. Our prayer this week was that...
Read Update →Today Andrew begins a new medication, a MEK inhibitor called trametinib, to hopefully reduce the tumor. It is not a chemotherapy, so on a good note, he will not have the typical chemotherapy side effects. It does, however, have its...
Read Update →I have realized that there are over 30 wonderful people or groups praying for Andrew, and there is just no way I can keep updating everyone on a regular basis during normal life. I apologize that I can’t text...
Read Update →We got back to CHLA late last evening via medical flight & ambulance. Sounds exciting, but it was actually a very long, tiring, and emotional day for Andrew. He was in PICU but just got transferred to his regular floor...
Read Update →